Tuesday, June 21, 2016

The Day Suicide Changed My Saturday To-Do List

People that know me well know that I am a planner, and yes some may even say I am a bit of a “control freak,” which I suppose is totally true. I am admittedly much more of an action, than a sit back kind of person. I believe Vanilla Ice said it best in his 90s masterpiece of a ballad, “If there was a problem, Yo, I’ll, I’ll solve it!” 

Moving on…

One year ago yesterday, I was visiting my father who was going through a divorce. The purpose of the visit was for me to help him “replenish” his home with decor that he wasn’t swift enough to negotiate for in the litigation and also just to make sure he was doing well. I had already been up early on a ladder cleaning and decorating bookshelves when I realized I needed to hurry because I had a list of antique stores in his town where I knew we could find some cute items. I had a plan for the entire day everything from shopping, lunch, playground to a much needed one on one conversation with my father on “choosing wiser next time.” Apparently life had a different to-do list in mind for the day.

I had barely gotten out of the shower when Bill started knocking on the bathroom door, telling me my dad was on the phone and that he thought something was going on. At first I didn’t think much of it and continued my "primping" routine... because every problem can be solved a little easier after you have applied some mascara and concealer. A few minutes later Bill returned and told me he really thought I needed to come out but he wouldn’t tell me what was happening. So I quickly got dressed, and as I marched out I  thought to myself “what in the world could be going on now?” My life had already been a  whirlwind lately. Less than two months prior Brody had been diagnosed with Autism and here I was helping my dad with a divorce so what problem could be occurring now? I turned the corner and made eye contact with my dad and knew that it was probably something serious by his expression. He looked up after getting off the phone and said “Sweetie, your mother’s died.” At that moment, I went numb and went into my Beth “fix this” mode. A little side note about me; whenever there is a crisis I tend to function at my best, in some capacities I sort of emotionally shut off in order to do what needs to be done. 
My first priority was to speak to my sister and brother and make sure they also had been told. 

I’m going to fast forward through details of the next hour and half of absolute utter confusion (seriously no other word can describe it), but we decided my dad would drive me to my hometown (which was about 45 minutes away) while Bill stayed behind with Brody. When we arrived at my childhood home and I saw the amount of cars and the sheriff’s office parked out front, my immediate reaction was frustration.  I thought to myself someone had passed away so why were all of these cars  along with law enforcement here? After we parked, I went to my sister and brother who were gathered outside (we weren't allowed inside the home) and then they told me that my mother had committed suicide. 

I had not seen my mother since my step-dad’s funeral when I was 8 month’s pregnant about 4 year's prior. I had made a decision to no longer have my mother in my life. This was not an easy decision and I know some in her life viewed it as a selfish decision. I had come to a point where I knew I wasn't strong enough to continue the battles and came to the realization that no matter what argument or ultimatum given things would not change. I did not want Bro to witness what side of me our relationship brought out or experience the dynamics involved. I just wanted to absolutely shelter him from that side of my life. But the decision to no longer have my mother in my life was a decision I had made and I have to own it and I do. 
And yes, I struggle every day with the guilt of the decision I made. 

Obviously, that day my Saturday to-do list changed drastically. Instead of what I thought would be a day of solving my dad’s feng-shui problems and giving him grief for having to do so, we were gathered in a funeral home planning my mom’s funeral. It’s crazy how in a moment your life can totally change forever. I never thought suicide would be a word that would be in my vocabulary but it is and will forever be. 

One of my dear friends has a perfect phrase. Excuse the language, “Everyone has their shit.” Isn’t that statement one of the truest statements ever made? Although social media is great for scrapbooking life’s happy and fun moments, we truly never know what is occurring in people’s lives. No one’s life is perfect, no matter how much you think “they have it easy” or “they have the perfect life” it simply does not exist. When things like this happen in your life you will see people who show you love and kindness that you never expected. You will have people that drive for 4 hours to your hometown and don't even approach you but instead sit quietly in a funeral pew just to let you know they are there. You will have people who will come to you when you need it most and you will have people that know to simply leave you alone because a lot of times that’s what you need most. Ultimately, when awful things occur you will witness some of the examples above of pure compassion and that is what will help to get you through.

I'm not entirely sure the purpose of why I am writing this blog. Maybe just to say you just never know how life’s to-do list can change your world entirely. 




Wednesday, March 23, 2016

A Letter to My Mini Human

Dear Brody, 
It’s been a year since the word Autism was added to our lives. You don’t know what the word means yet but to me it is the most beautiful and terrifying word I have ever heard. It is beautiful because Autism is a part of you, and you my precious baby boy are beautiful but it also terrifies me as it holds so much unknown in our lives and I have seen how it makes you struggle.
Mommy is so proud of you and all that you have done this year, my mini. I know it was hard having to change schools, it was hard on Mommy and Daddy too. Each week you go through so much, at school you have 2 group speech therapies, 1 individual speech therapy, occupational therapy, then two mornings before school we go for extra speech and occupational therapies. Then at night we work on homework that the teachers and therapists think will help you.  You are amazing. 
I’m sorry you sometimes see Mommy cry. It makes me laugh when you say that my eye color is either black or red - for the record Brody my eye color is Blue like yours. :) Please know baby boy these tears are nothing you caused but just from frustration in not knowing how to help you more and roadblocks we encounter in trying to help you and sadness in seeing all that you have to endure at such a young age when other 4 year olds are able to be kids. 
There are so many aspects of ASD that I don’t understand and I wish you could explain to me. I don’t know why a certain commercial on the Disney channel makes you turn around and cover your ears. I don’t know why you need to clinch your shirt and pace back and forth each night. I don’t know where you go when your little eyes get lost. I will keep searching for you my mini, to understand and to help but I want you to know, that Mommy loves you and is proud of you. 
Now let’s turn up the Uptown Funk and dance because it is time to start a new day.
Love,

Mommy

Tuesday, June 16, 2015

Changing schools


The last post was updating about our full Vanderbilt assessment. The report was very thorough and included recommendations on treatment. We have spent so many hours meeting with people to learn about offerings at different schools (public and private), talking to professionals, parents, etc. It has been like navigating in a maze. Each time you think you've resolved an "issue" two more appear. There really is not a "best" option. For B to receive the recommended amount of therapies, he will need to transfer to a developmental Pre-K program (which is only offered at Whitehall Pre-K) beginning this school year. I can’t tell you how difficult of a decision this has been. Some of the issues we were having in deciding to move him was the condition of his new school is not great. It angers me that we do not put more priority and emphasis in providing better conditions at all our schools (that’s another rant/discussion). Another issue we encountered is there not being any after school at the school. The school will only bus children to residential addresses and no local daycares offer part-time or after-school care. It makes it very difficult for working parents. Thankfully, our in-laws have agreed to pick Brody up 4 days a week from school and Bill will pick him up one day. I hated to ask this of them but there were no other options and I am slowly realizing and learning to actually ask for help.
We have loved his current school (USJ) and want to make sure people understand he was not asked to leave. They offered to help us in any way they could but we understand that they are limited in what and how they can help. We will miss everyone and are grateful with how they have been so kind to us during this time. Ultimately, for us, it came down to listening to the recommendations from professionals on early intervention, where can we maximize the amount of therapies and to surround him with people that have more experience working with kids with Autism. I keep telling myself it's not about what we want but what he needs.
I think the hardest part for us is accepting that our child actually needs special needs services. It’s hard to describe coming to terms with realizing your child needs more than others and more than what you know to how to give. I have never been so unsure of what to do but all we can do is try what we think is the "better" option. Brody does not handle change very well so I am very worried on how the transition will impact him. Thank you for your continued prayers for him. We definitely appreciate the positive support.